We want to help you.
We are a small charity providing support, advocacy, and information to all those affected by Huntington’s Disease.
We work closely with Amaryllis House in Lower Hutt, the first residential unit dedicated to caring for people with Huntington’s Disease in Aotearoa, New Zealand.
The 2026 annual general meeting will be held on Sunday, the 13th of September 2026 at 11.00 am in the day room, Amaryllis House, Watsonia Court, 1 Rodney Street, Lower Hutt. Your support is appreciated.
Lifelong
Inherited
Family
Everyone
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Amaryllis House
Amaryllis House is a permanent and respite residential service supporting people with Huntington’s and their families. It was opened in Lower Hutt in 2004.
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About Huntington's
Huntington’s is referred to as a disease of families/whanau. In many families, more than one member may have Huntington’s at the same time and many members are at risk of developing the disease. Every member is affected emotionally, financially and socially and all family members need support, advice & care.
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Get Involved
We desparately need your help. The Association is a small voluntary organisation dependant on grants and donations. Funding continues to be challenging in spite of our best efforts to educate, Huntington’s is still not a high profile disease.
In the Media.
Follow the below links if you are interested in learning some more about living with Huntington’s Disease in Aotearoa New Zealand.