From Jean E. Miller in the USA
January 2008
Huntington's Disease Video Awareness Theatre
"This site is dedicated to the efforts of those people living with
Huntington's Disease who have taken precious time out of their life to
create awareness about the disease! Whether it has been done at the local
level through fund raising, support to others living with HD, through local
or national media news coverage, or through their own personal documentary
efforts, the rest of the HD community can not thank you enough!
"Besides the personal one's made, like NYA Jacey's wonderful tributes to her
'Lil sis & Dad, there is a GREAT training 10 minute video under the link
Caring For Someone With Huntington's Disease called "A Practical Guide to
Managing Feeding and Swallowing Difficulties in HD". We need 100 more
video's of this type too! There's also several great Woody & Arlo Guthrie
video's. There's so many of Arlo on YouTube, I couldn't link them all!
"So many of these would make awareness video's for HD fund raisers or other
events. If anyone knows how to download the video onto a home computer from
these sites, please share how! I'd love to use the one on swallowing in HD
to give to local facilities caring for someone with HD!
"Hope you like having all of these in one place! If you know of a link to a
video about HD, please let me know it and I'll link it!"
Email Jean Miller
Articles from the International Huntingtons Association
Highlights from Toronto - August 2003.
The World Congress on HD, scheduled for Toronto, Canada, in August
did not go ahead as planned due to the "big blackout". However a smaller,
revised conference was held for those who were able to get to Toronto. Here are
some of the highlights of that conference.
Other Articles
How Huntington’s Disease Affects The Brain
A Compilation of Facts By Jean Miller
First, and foremost, as most of you know I am in NO way, shape or
form a medical or clinical professional nor do I have any plans to become one! I am
only one human being who has lived with Huntington's Disease since 1983 and, over those
years, have learned that HD affects people differently primarily because of how the
disease affects different area's of the brain. So, inmy unprofessional
opinion, atrophy of specific area's in the brain caused by Huntington's disease can be
directly relatedto the changes seen in an individual's judgment, memory, and other
cognitive functions experienced in people with HD.
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