10 July 08
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Huntington's Disease Association (Auckland) Inc.
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The Neurological Support Centre
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7A Taylors Road
Sandringham
Auckland, NZ
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P O Box 16 238
Sandringham
Auckland 1351, NZ
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Tel: (09) 815 9703
Fax: (09) 815 9704
Email: Auckland
Family Liaison Co-ordinator:
Jo Dysart
Freephone: 0800 HD AUCK (0800 432 825)
Mobile: 027 432 8255
Office: 09 815 9703
Fax: 09 815 9704
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PATRON
Professor Richard L M Faull
Division of Anatomy with Radiology, University of Auckland
ORGANISATION
The Huntington's Disease Association (Auckland) Inc is an Incorporated Society servicing the
greater Auckland and Northland areas. The Association links with other HD Associations in
New Zealand and has joint affiliation with the International Huntington's Association.
OBJECTIVES
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Promote awareness, knowledge and understanding of the Huntington's gene and disease.
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Assist members of families affected by Huntington's and to assist their carers and
communities.
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Facilitate the provision of suitable professional assistance to those at risk of HD, those
experiencing HD and their families.
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Promote research into all aspects of Huntington's disease.
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OFFICE and HOURS
The small mezzanine office is at The Neurological Centre. The Centre is open 8.30 - 4.30
during business hours (closed Christmas-New Year). Jo is available by appointment only so that
she can keep her time flexible to meet the needs of her famlies.
FAMILY LIAISON SERVICES
Previously known as Field Officer, now Family Liaison Co-ordinator, Jo Dysart
is contracted by the Auckland Huntingtons Disease Trust. She manages flexible hours and
works 30 hours a week. This way she is available to:
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provide a range of individual and family-based services including information, advocacy,
education, problem resolution, advice and referral or networking
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provide information services to caregivers, health professionals, community agencies
and the public
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maintain close liaison with clinical specialists, Home and Community Health Services,
Northern Regional Genetic Services, Needs Assessment and Service Co-ordination Services
(NASC), Disability Services, researchers at University of Auckland (Division of Anatomy and
Radiology, Department of Psychology) and relevant community and government agencies
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facilitate support groups and education with gene-positive persons
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host Saturday Seminars with relevant guest speakers where people attending can meet
each other and share a BYO lunch (a telephone network is used to notify dates)
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organise Carer Seminars and invite informal caregivers to attend
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provide in-service sessions for formal carers as requested
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provide update addresses of persons wanting to be on the "Huntington's News" mailing list
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maintain the local mailing list and inform people of upcoming events
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RESOURCES
The office holds information on a wide number of issues pertaining to Huntington's. Print
material, books and audio-visual material may be borrowed or bought. Photocopying and
internet facilities are available on-site.
COMMITTEE
Committee meetings are held every six weeks and new members are welcome. The Annual General
meeting is usually held in June or early July at the Disability Resource Centre. Researchers
are invited to provide updates on current research initiatives and developments.
FUNDING
The Association is partly funded through membership fees, donations, bequests and fundraising.
It is supported by the fundraising efforts of the Auckland Huntington's Trust: contract with
Disability Resource Centre (DIAS funding), past grants (ASB Trust, Paul Newman Foundation,
McKenzie Trust) and current grant (Portage Trust).
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